Monday, December 5, 2016
Saturday, December 3, 2016
A glimpse into my fibo
A glimpse into my fibo,
I will never be or even come close to performing, functioning and having
the mindset I once did prior to
this horribly debilitating illness...
It causes me extreme depression... frustration and sadness!
We who suffer with Fibromyalgia or Lupus, Chronic Pain or
It causes me extreme depression... frustration and sadness!
We who suffer with Fibromyalgia or Lupus, Chronic Pain or
a combination have eventually succumbed to the reality that our lives and standard of
living is incredibly compromised and will never be the same as before...
The individuals we once were no longer exist and part of you (me, us) dies.
That person that was able to go to work, engage with family, friends, interact with
That person that was able to go to work, engage with family, friends, interact with
life and sustain a sense of normalcy is gone...
I am always going to be me, Cathy Kean ...
But, I am substantially DIFFERENT!!!
I suffer with cognitive difficulties or fibo fog, headaches, sensory sensitivity, depression, guilt, frustration, anger, defeat, hopelessness,
But, I am substantially DIFFERENT!!!
I suffer with cognitive difficulties or fibo fog, headaches, sensory sensitivity, depression, guilt, frustration, anger, defeat, hopelessness,
exhaustion, muscle tightness, digestive issues, anxiety, panic attacks, pain, pain, pain!
I never feel good, experience such a sense of lack of control over my life, grief, worry, immune dysfunction, chest pain, inflammation, insomnia, memory loss, financial difficulties.
Additionally, to this my body, our bodies, are overly sensitive to, well, pretty much everything! It's not that we're emotionally over-sensitive it's a psychological thing...
Medically speaking the word sensitivity is often used when talking about allergies etc...
Medically speaking the word sensitivity is often used when talking about allergies etc...
it's because something in the immune system malfunctions and begins reacting inappropriately to a substance.
The immune system has been sensitized to the substance and the central nervous
system or CNS is made up of your brain, spinal cord and nerves of the spinal cord.
The entire nervous system becomes sensitized to anything unpleasant the medical
term for those unpleasant things is "noxious stimuli", it can be a bad smell, pain,
bright light anything.
Because our bodies are sensitive they react more strongly than most people,
lights are too bright for us when they're just fine for other people. The same goes
for noise and visual chaos, heat, cold, pressure on the skin, etc...
Our nerves overreact to the things around us, and our brains basically get overloaded
Our nerves overreact to the things around us, and our brains basically get overloaded
when they get the signals which makes it worse and intensifies our pain.
Imagine feeling like you were burning from the inside out.
Stress, let me repeat this stress is a huge, huge, factor in exacerbating
these already excruciating issues!
Things said that hurt those of us who suffer from fibromyalgia/ Lupus/Chronic Pain are comments such as " But you don't look sick". In a disbelief, at times accusatory manner.
Things said that hurt those of us who suffer from fibromyalgia/ Lupus/Chronic Pain are comments such as " But you don't look sick". In a disbelief, at times accusatory manner.
It's hard and a normal reaction to want to defend your illness but, it just gets to be to
much further isolating you from family, friends and outsiders.
I live with an intense deep exhaustion that makes every movement feel like I'm trying to move at the bottom of the ocean. Imagine if you will what that might look or begin to feel like.
I suffer from an extremely sensitive heat intolerance that makes me feel light headed, faint even in what feels like a normal room temperature to you My bones often feel like someone is using a jackhammer on them, especially during a change of weather.
Something... anything even something little, stresses or worries me, my body rebel's and symptoms flare up just for the fun of it. My nerves often give me phantom itches that make me scratch myself raw with, an itch that doesn't really exist.
The simplest tasks can take me more than 5 times longer and take, 5 times as much energy to finish than a normal person.
It is extremely difficult for me to concentrate on anything, and as a result my memory suffers drastically! I am told constantly by others don't you remember, I told you?
I live with an intense deep exhaustion that makes every movement feel like I'm trying to move at the bottom of the ocean. Imagine if you will what that might look or begin to feel like.
I suffer from an extremely sensitive heat intolerance that makes me feel light headed, faint even in what feels like a normal room temperature to you My bones often feel like someone is using a jackhammer on them, especially during a change of weather.
Something... anything even something little, stresses or worries me, my body rebel's and symptoms flare up just for the fun of it. My nerves often give me phantom itches that make me scratch myself raw with, an itch that doesn't really exist.
The simplest tasks can take me more than 5 times longer and take, 5 times as much energy to finish than a normal person.
It is extremely difficult for me to concentrate on anything, and as a result my memory suffers drastically! I am told constantly by others don't you remember, I told you?
At times thinking I intentionally am trying to get out of something...
But, unless you've walked in my/our shoes and carry our burden you will never ever know the struggles beneath our surface!
-- to be continued getting tired but will probably just lay there in pain
but with the support of others the best mind-frame possible that is part of the battle an instrumental part of the battle!
Written by,
Cathy Kean
#Fibromyagia #Lupus #Invisibleillness #hurting #pain #chronicpain #butyoudon'tlooksick
#fibofog #helpfindacure #isolation #depression #drained #fibrofighter #chronicillness #invisibleillnessawareness #emotional #panicattacks #anxiety #PTSD #Fibroflare #insomnia
#migraines #selfworth #overwhelmed #painsucks #tired #cognitivedifficulties #grief #memoryloss #feelingalone #exhaustion #inflammation #stress #judgements #struggles #whoamI ##drugaddict #youhavenoidea @walkinmyshoes #Fibrowarrior #spoonie #sleep #sleepdisorders #burden #wastingtime #iamwhatiam #phantomitch #burning #flare #nerves
#CNS #OVERSENSITIVE #immunesystem #sensorysensitivity
Sunday, May 22, 2016
Wednesday, January 27, 2016
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