Help grandson has Autism... Mom & dad no help I have son 17 years old with Autism and another my autistic grandson ♥
who is 3 years old (nonverbal)…♡
I am just so heart broken regarding my
3 year old grand baby who has Autism. ..
this is not my first go around with a child who has Autism
However, 17 years ago before we had
all these amazing informative sites, advocacy
groups, foundations etc….I was basically left
to my own devices
I was a single parenrt of 4 children at the time
Oldest was 10 son with ADHD…
5 year old son with ADHD…
14 month old daughter (ADHD too…!) and youngest at 4 months …
I just…???? Knew… I knew something was wrong severely wrong,
I was not at all familiar with
Autism …nor.. had I had any clue what was going on with my son???
I just knew … something was different …something was not right!
My baby, my heart, he would not allow me to hold him ..he would not give any eye contact whatsoever… He becamevery isolated and had extreme off the
wall behaviors… Which after having 3 prior to him… JUST…it just wasn’t fitting…
something was so different…
so, so heartbreaking ... In addition…
He also had numerous health issues which
definitely clouded
the already overwhelming challenges he…
We… were facing and going through…
Doctors…
Inland Regional, School District and
The County were trying to discount
and minimize my
son’s issues/behaviors/peculiarities
as they stated… were due “Most likely to,
his Illness/illnesses….???? Which they could
not define… or even come close to
giving me any reason… diagnosis or????
And this was Loma Linda Hospital…
We were there5 1/2 months that particular stay…
He also at birth weighed 5 lbs 4oz. However, when they drained his lungs
directly after birth He ended up
weighing 4lbs… Ughhhhhhhh…
He was in NICU for first 8 months of his
life… even then I knew…. I would ask
specialist… pediatrician’s… nurse’s….
respiratory… Neurologicalogist…
Everyone… and anyone…. What was wrong
With my child…??? I would reiterate
over and over and over again the
things I observed and didn’t see which were
significant milestonesbenchmarks…which
he was not even coming close
to meeting yet preforming
I know that being in a hospital
setting, in a crib definitely factored
Into equation but… I worked with him
As much as he would Tolerate it…
Which wasn’t much I know I know
Being in a hospital And not feeling well
In addition too… Everything else they
Were trying to lay On me…
“Oh, this must be Your first baby…
Hmmmm….” … (no 4th… thank you so much….!) “Or… all children/
babies all preform, and meet certain milestones at different times,
not all fall within the STANDARD timeline…”…
(Duhhh… Huhhh mother…”.! Sorry,
I am improvising a
little… lol … at least that’s how they made
me feel… :’( …(again #4 child….
I know these things Plus I ran a Child
Care Facility… have
Early Childhood Education
background….. hello… In addition
Started RN Program in college
However, first son passed away when..
I was 9 months pregnant due to an
accident :( … My oldest son…
ADHD… When hewas born…I was nursing
him when all of milestones benchmarks...breathing and turned blue…
At which time they, the doctors…
nurses etc…. rushed him into observation
nursery and approximately 2-3
hours later brought him back to me and
my husband at the time… stating that because
my labor was so long and cord got
wrapped around his neck which caused
his heart rate to drop so rapidly…
he was in fetal distress… a emergency
C section had to be preformed and…
And APPARENTLY… he, my son had
fluids still lodged
in his lungs… throat etc… which they “the
doctors doctors” said, “normally
these secretions would be pushed
out of babies
lungs, throat…. etc… Had I delivered him
naturally…???
Okay… Because as they stated also…
“I WAS A FIRST TIME MOM…. I AM JUST
BEING OVERLY CONCERNED REGARDING FACTMY BABY HAD JUST
STOPPED BREATHING
AND TURNED BLUEEE ON ME… BUT
I guess that is supposed to be a normal occurance for a newborn???
Hmmmm… he also had
a funny little sound when he would breathe…. kinda sounded there wwasas
Some kind of stricture in his airway….
But what do I know??? I was only a first
time parent…! It just didn’t settle
Well with me especially after already losing one 9 months pregnant
In addition… My grandmother lost
Two babies while they slept and
NEVER WOKE UP… it is now called
SIDS at the time they did not know
what the cause or reason behind them
passing during their sleep was…
I explained this all to doctors and that
my husband and I would feel much
more comfortable with our son being
sent home on a Apnea monitor…
Again, we were discounted…
Not heard… they literally made
us feel stupid… ignorant in fact
for asking that all…. babies
had/have issues….“You are first time
Parents…. ding, ding
What could you
possibly know…”“We are the all
knowing professionals…”…
“How could you even Question us”??????
Well, well we took my oldest son home
and without a Apnea monitor…
He was home not more than 32 hours…
mind you… we lived 2 1/2 hours
from any hospital…bI was driving home
with my son on a desolate road which was a shortcut through the desert
to our town when
all of a sudden he gasped for a breath
I looked down at
him and he was blue, unresponsive,
and had blood coming from his
mouth and nose… I immediately skid
to a screeching stop pulled him out of
his car seat and gave him CPR it
was so scary… I thought my
life was going to end right there…
I immediately buckled him back
in to his car seat
and proceeded to drive I must have
been going 70 to 80 miles per hour
on this winding small two lanes highway
Screaming to God…Noooooo….
God please….
Please please lord… God please do not
Take my son from me…. pleaseeeee…
Only to look down again and again and
again… at my son NOT BREATHING…
I pulled him out of the car…
then car seat
each time to preform CPR… every time
not knowing if I Could get him to
Breathe again… it was one of the LONGEST JOURNEYS OF MY LIFE….
and I say one… Of the longest journeys of…
Because there have
Been many... Well…
I am here to report... That, that baby is
Now 28 years old with his own baby girl
now!!! We took our
Son back to Loma...Linda Hospital and
Even though we
Told the doctors... The whole story
about the fact I Had to resuscitate
him over 10+ times
That day plus paramedics too…
Once I got to
My home were called.Because he had
Stopped breathing... Again…
They.. The doctor’s
Needed to have... Proof… oophhhhhs
Sorry Sorry…. documentation of
My son’s stopping breathing so
They could..? What?? See if I had all
My marbles upstair... Or… maybe…?
I was just a mother who was very in tune
with her baby..? Well we stayed at
Loma Linda Hospital
That particular stay for 3 weeks…
Besides the fact That he was very
Jaundiced and Bilirubin was very
High… and he hadnInternal bleeding
Which they attributed to the medications that
They gave him In nursery which
Observing him right ...After birth when
He stopped breathing
First time… Well he did stop
breathing every evening while
staying at the hospital …
However, I’m a mother…The monitor would
go off which would indicate that he
had first decreased heart rate and then
alarm would sound that he had stopped
breathing my husband would run out to find nurses, nurse anyone… so they could get
their darn documentation…
they were under staffed and had too many patientsto break away to see our son…
a baby that was ... NOT BREATHING…!
Of course I would not even begin to wait
any substantial amount of time…
I would in fact immediately stimulate
him to breathe which
was usually sufficient enough.
Was I to wait an undetermined
amount of time until a
nurse would free herself to come and look at a monitor going off and knowing there were 1-2 parents there at any given time to help
assist their son when they were busy?
No…. they did not!!!
The doctors approached us and
told us that our son was good to go and that they found nothing else wrong with him…
Frustrated, overwhelmed…
furious we asked “well …what about the apnea monitor and the fact that he’s been setting it off every single he goes to sleep”! “Well, well, well …the doctors said that there is
have no documentation of
that fact our reply of course was that
we were not going to sit there watch our son turn blue… press the button for a nurse…
chase out in the hallway go room to room for a nurse… while he’s there not breathing…
having oxygen deprivation to his brain …
absolutely not!!!
Your understaffed and overwhelmed with patient load and that is why there is no documentation… because your lack of management and quality of care…
That is why thereis NO DOCUMENTATION…!!!
Well the doctor told us that are some good stay one more night but he would be released in the morning if there was no documentation at night then he would be sent home without it apnea monitor as there would be no medical finding… no medical necessity….
Well, once again the monitor went off my son stopped breathing…
this time we have a plan …
when I saw his heart dropping down…
I had my husband
go into the procedure room where the nurse was with a doctor… had him walk in and grab the nurse… dragged her into our sons room to
document his eventsWhich that evening
happened to be more than 2o
episodes each and every time he, my
Husband ran out
Into hallway yelling for a nurse
and he’d hear a voice. ...Okkkkkklk I will document this one too! Crazy… it was
Ludicrous that we had to go through that…
Had we not been diligent, forceful,
half crazy maybe…
Because we were
Not being believed and or heard… Well the following morning the doctor came in with discharge papers and we asked for the Apnea monitor and he said, ” oh I never ordered a monitor for you to go home with”!
I know there’s documentation that your son stopped breathing several times last night but, you’ve gotta understand…
parents get tired of putting the monitor on their children because there are a lot of false alarms! So because of that they just no longer put it on their children and then the monitor goes to waste or the child passes…???????
Are you kidding me??? My husband and I looked at each other shook our heads went over into the corner talked for a couple minutes to each other we asked for a piece of paper and proceeded to write….
I doctor blah blah…
Give my word with 100% accuracy that nothing will happen to blank.. blank… blank.. our sons name… if
I send him home with his parents without a
Apnea monitor or….
I will be sued, Loma Linda Hospital will be sued, they (us) will own Loma Linda Hospital and I promise to hand over my medical license for good if anything were to happen…!
Well of course he couldn’t sign that we got the monitor went home and thank you Lord Jesus we did because my son would not be alive today if we didn’t have that monitor!
By the way he also had Tracheal Malaysia…
That was that funny breathing sound we heard…
Which was extremely dangerous 28 years ago literally he had a flappy airway…
Which if he were sick or crying it would literally make it impossible for him to breathe…
Ahhhh … was very stressful…
There was a point to that story sorry I got long winded!
The fact is I don’t trust anyone has my child orvmy grandchilds best interest at heart like I do!!!
I know that the school district, regional centers… state and government…
All say that they are there for our children maybe to a certain extent that is true…
and maybe I am jaded because of all the struggles I’ve had in trying to get my son the services he so desperately needed to be successful and BRIDGE THAT GAP…
17 years ago I had to go to the library to research everything.. 17 years ago they did not have Advocates there to help me…
I sat there 17 years ago at a table with 11 different individuals from the regional center….
the school district.. the early education center…. psychiatrist… nurse….
I listened intently to What they had to
Say.. What tremendous
Services they thought they were
Offering my son… (Me as he is my baby…
My son … if I don’t represent him Avocate for him who will want this for him more than I… NO ONE… I WAS NOT GOING TO BACK DOWN OR BE INTIMIDATED BY THERE SHERE NUMBERS BY THEIR FANCY LINGO…
I WAS CAPABLE OF BEING THE BEST DARN REPRESENTATIVE FOR
MY SON WITH DETERMINATION AND WORK… HARD RESEARCH WORK AND BOY OH OH BOY…I DID :)
I HANDED ALL 11 SPECIAL EDUCATION
INDIVIDUALS A PICTURE OF MY SON…
I TOLD THEM I RESPECT ED AND LISTENED TO THEM RESPECT FULLY I WANTED TO REQUEST THE SAME… :)
Well I got everything I asked for even though they told me it was not possible…. I told them I wanted that huge gap closed….
Narrowed…!!!!I was beyond myself … I knew
that everyone thought I was being
OVER DRAMATICOR CRAZY…
BUT… I just… feltIn my heart,
my soul, my motherly... Instinct was crying
Out loud to me... Help him… help help
This precious little guy is lost in his
own strange confusing little world…♡♥♡♥
Well my son is 17 now if you were to meet him and did not know he has Autism there is no way in a million years you would ever be able to guess or see that…!
I’m telling you my son started services at 2 years old …in home and then went to a early education center 5 days a week plus occupational therapy in addition physical and speech therapy …
I did not stop…
He is in a regular high school now he’s only in two special ed classes…
he’s very social…he’s one of the most popular kids in the whole school!
Is he my miracle child absolutely…
my father says “he is a miracle, he was not supposed to be with us”! He was so, so, so incredibly delayed in every way shape and form… he had no language what so ever instead of allowing them to put my son in a severely handicapped class…
I insisted on him going into a mild to moderate speech class where he could emulate and copy those kids who were talking… I have always worked with him individually myself! I’ve worked and worked and worked and he is my success story he is truly a gift! Does he have social issues at times yes! Is he over the emotional at times… yes absolutely! Do I have to take them away
privately and talk to him to
calm him down yes! But he is bright, he is articulate, he is loving, he is kind,
he is magnificent! Don’t ever give up,
I’m sorry but don’t ever take no for a answer….
find a way to get your child … yourgrandchild…
your friend’s child… whoever it is…
Do not take no for an answer! Bridge that gap right away immediately..
It’s imperative when they’re young to get services in when they turn two
and then follow up with the early education center after they turn 3… ask for extra services such a speech therapy occupational therapy Physical therapy and the list goes on and on and on… I could go on and on forever this subject or ever and ever..
I’m very passionate about children with disabilities especially autism! It is so completely misunderstood which is very sad for how smart and educated our society is supposed to be!
Back to my grandson which was my initial post! My beautiful wonderful sweet… my heart… he’s 3 years old…
Ohhhh my gosh he is just the most amazing amazing child ever…
I literally was given 3 months to live three and a half years ago… then came along my little grandbaby and look at me now still here …
still going strong.. am I sick at times yes but that baby gave me the strength and will and determination to keep on fighting.. not only for myself but for him too!
The only thing is his mother battles me on every aspect of him getting services…
She’s in denial she doesn’t want to admit her son has Autism even though…
I knew it when my grandson was 4 months…
I would tell her that I thought that he had autism she lived here for the first two years along with my son and grandson!
It took a stranger to tell her for her to finally think there was something to it!
Even though I have a son and I advocate for other autistic children shaking my head….
I can’t even help my own grandson! Help me somebody give me some advice!
He has since been diagnosed with Autism and is going to an early education center but
She has him on no schedule he’ll go to bed at 2, 3, 4am in the morning and has to be up and on the bus by 7 AM… They have no sense of organization there! They are more concerned with going outside to smoke a cigarette or being on Facebook or on their phone or computer, watching TV, playing video games verses truly giving their son the time and attention he needs they give their daughter who is a year old such positive reinforcement and attention and hardly anything to him…
When he gets frustrated or expresses himself loudly they yell at him and they just don’t get it they don’t understand he’s frustrated cuz he can’t communicate to them! No…..
I can’t even finish… I’m crying so hard right now….I just don’t know what to do I.. as a grandmother really have no rights… which is criminal! So do I just try and get custody raise my grandson and do the best for him! All of their family members see the close connection I have with my grandson and are amazed they too believe that I should try and get custody of him??? I am lost I don’t know what to do I just see my grandson slipping further further down because he has two parents that don’t want to face the fact that their son has autism and they think it’s an excuse!
Help me please! !!!!
#grandson with autism#grandparents rights#What are my rights as grandparent of autistic grandson#autism#autistic grandson#nonverbal grandson
I
who is 3 years old (nonverbal)…♡
I am just so heart broken regarding my
3 year old grand baby who has Autism. ..
this is not my first go around with a child who has Autism
However, 17 years ago before we had
all these amazing informative sites, advocacy
groups, foundations etc….I was basically left
to my own devices
I was a single parenrt of 4 children at the time
Oldest was 10 son with ADHD…
5 year old son with ADHD…
14 month old daughter (ADHD too…!) and youngest at 4 months …
I just…???? Knew… I knew something was wrong severely wrong,
I was not at all familiar with
Autism …nor.. had I had any clue what was going on with my son???
I just knew … something was different …something was not right!
My baby, my heart, he would not allow me to hold him ..he would not give any eye contact whatsoever… He becamevery isolated and had extreme off the
wall behaviors… Which after having 3 prior to him… JUST…it just wasn’t fitting…
something was so different…
so, so heartbreaking ... In addition…
He also had numerous health issues which
definitely clouded
the already overwhelming challenges he…
We… were facing and going through…
Doctors…
Inland Regional, School District and
The County were trying to discount
and minimize my
son’s issues/behaviors/peculiarities
as they stated… were due “Most likely to,
his Illness/illnesses….???? Which they could
not define… or even come close to
giving me any reason… diagnosis or????
And this was Loma Linda Hospital…
We were there5 1/2 months that particular stay…
He also at birth weighed 5 lbs 4oz. However, when they drained his lungs
directly after birth He ended up
weighing 4lbs… Ughhhhhhhh…
He was in NICU for first 8 months of his
life… even then I knew…. I would ask
specialist… pediatrician’s… nurse’s….
respiratory… Neurologicalogist…
Everyone… and anyone…. What was wrong
With my child…??? I would reiterate
over and over and over again the
things I observed and didn’t see which were
significant milestonesbenchmarks…which
he was not even coming close
to meeting yet preforming
I know that being in a hospital
setting, in a crib definitely factored
Into equation but… I worked with him
As much as he would Tolerate it…
Which wasn’t much I know I know
Being in a hospital And not feeling well
In addition too… Everything else they
Were trying to lay On me…
“Oh, this must be Your first baby…
Hmmmm….” … (no 4th… thank you so much….!) “Or… all children/
babies all preform, and meet certain milestones at different times,
not all fall within the STANDARD timeline…”…
(Duhhh… Huhhh mother…”.! Sorry,
I am improvising a
little… lol … at least that’s how they made
me feel… :’( …(again #4 child….
I know these things Plus I ran a Child
Care Facility… have
Early Childhood Education
background….. hello… In addition
Started RN Program in college
However, first son passed away when..
I was 9 months pregnant due to an
accident :( … My oldest son…
ADHD… When hewas born…I was nursing
him when all of milestones benchmarks...breathing and turned blue…
At which time they, the doctors…
nurses etc…. rushed him into observation
nursery and approximately 2-3
hours later brought him back to me and
my husband at the time… stating that because
my labor was so long and cord got
wrapped around his neck which caused
his heart rate to drop so rapidly…
he was in fetal distress… a emergency
C section had to be preformed and…
And APPARENTLY… he, my son had
fluids still lodged
in his lungs… throat etc… which they “the
doctors doctors” said, “normally
these secretions would be pushed
out of babies
lungs, throat…. etc… Had I delivered him
naturally…???
Okay… Because as they stated also…
“I WAS A FIRST TIME MOM…. I AM JUST
BEING OVERLY CONCERNED REGARDING FACTMY BABY HAD JUST
STOPPED BREATHING
AND TURNED BLUEEE ON ME… BUT
I guess that is supposed to be a normal occurance for a newborn???
Hmmmm… he also had
a funny little sound when he would breathe…. kinda sounded there wwasas
Some kind of stricture in his airway….
But what do I know??? I was only a first
time parent…! It just didn’t settle
Well with me especially after already losing one 9 months pregnant
In addition… My grandmother lost
Two babies while they slept and
NEVER WOKE UP… it is now called
SIDS at the time they did not know
what the cause or reason behind them
passing during their sleep was…
I explained this all to doctors and that
my husband and I would feel much
more comfortable with our son being
sent home on a Apnea monitor…
Again, we were discounted…
Not heard… they literally made
us feel stupid… ignorant in fact
for asking that all…. babies
had/have issues….“You are first time
Parents…. ding, ding
What could you
possibly know…”“We are the all
knowing professionals…”…
“How could you even Question us”??????
Well, well we took my oldest son home
and without a Apnea monitor…
He was home not more than 32 hours…
mind you… we lived 2 1/2 hours
from any hospital…bI was driving home
with my son on a desolate road which was a shortcut through the desert
to our town when
all of a sudden he gasped for a breath
I looked down at
him and he was blue, unresponsive,
and had blood coming from his
mouth and nose… I immediately skid
to a screeching stop pulled him out of
his car seat and gave him CPR it
was so scary… I thought my
life was going to end right there…
I immediately buckled him back
in to his car seat
and proceeded to drive I must have
been going 70 to 80 miles per hour
on this winding small two lanes highway
Screaming to God…Noooooo….
God please….
Please please lord… God please do not
Take my son from me…. pleaseeeee…
Only to look down again and again and
again… at my son NOT BREATHING…
I pulled him out of the car…
then car seat
each time to preform CPR… every time
not knowing if I Could get him to
Breathe again… it was one of the LONGEST JOURNEYS OF MY LIFE….
and I say one… Of the longest journeys of…
Because there have
Been many... Well…
I am here to report... That, that baby is
Now 28 years old with his own baby girl
now!!! We took our
Son back to Loma...Linda Hospital and
Even though we
Told the doctors... The whole story
about the fact I Had to resuscitate
him over 10+ times
That day plus paramedics too…
Once I got to
My home were called.Because he had
Stopped breathing... Again…
They.. The doctor’s
Needed to have... Proof… oophhhhhs
Sorry Sorry…. documentation of
My son’s stopping breathing so
They could..? What?? See if I had all
My marbles upstair... Or… maybe…?
I was just a mother who was very in tune
with her baby..? Well we stayed at
Loma Linda Hospital
That particular stay for 3 weeks…
Besides the fact That he was very
Jaundiced and Bilirubin was very
High… and he hadnInternal bleeding
Which they attributed to the medications that
They gave him In nursery which
Observing him right ...After birth when
He stopped breathing
First time… Well he did stop
breathing every evening while
staying at the hospital …
However, I’m a mother…The monitor would
go off which would indicate that he
had first decreased heart rate and then
alarm would sound that he had stopped
breathing my husband would run out to find nurses, nurse anyone… so they could get
their darn documentation…
they were under staffed and had too many patientsto break away to see our son…
a baby that was ... NOT BREATHING…!
Of course I would not even begin to wait
any substantial amount of time…
I would in fact immediately stimulate
him to breathe which
was usually sufficient enough.
Was I to wait an undetermined
amount of time until a
nurse would free herself to come and look at a monitor going off and knowing there were 1-2 parents there at any given time to help
assist their son when they were busy?
No…. they did not!!!
The doctors approached us and
told us that our son was good to go and that they found nothing else wrong with him…
Frustrated, overwhelmed…
furious we asked “well …what about the apnea monitor and the fact that he’s been setting it off every single he goes to sleep”! “Well, well, well …the doctors said that there is
have no documentation of
that fact our reply of course was that
we were not going to sit there watch our son turn blue… press the button for a nurse…
chase out in the hallway go room to room for a nurse… while he’s there not breathing…
having oxygen deprivation to his brain …
absolutely not!!!
Your understaffed and overwhelmed with patient load and that is why there is no documentation… because your lack of management and quality of care…
That is why thereis NO DOCUMENTATION…!!!
Well the doctor told us that are some good stay one more night but he would be released in the morning if there was no documentation at night then he would be sent home without it apnea monitor as there would be no medical finding… no medical necessity….
Well, once again the monitor went off my son stopped breathing…
this time we have a plan …
when I saw his heart dropping down…
I had my husband
go into the procedure room where the nurse was with a doctor… had him walk in and grab the nurse… dragged her into our sons room to
document his eventsWhich that evening
happened to be more than 2o
episodes each and every time he, my
Husband ran out
Into hallway yelling for a nurse
and he’d hear a voice. ...Okkkkkklk I will document this one too! Crazy… it was
Ludicrous that we had to go through that…
Had we not been diligent, forceful,
half crazy maybe…
Because we were
Not being believed and or heard… Well the following morning the doctor came in with discharge papers and we asked for the Apnea monitor and he said, ” oh I never ordered a monitor for you to go home with”!
I know there’s documentation that your son stopped breathing several times last night but, you’ve gotta understand…
parents get tired of putting the monitor on their children because there are a lot of false alarms! So because of that they just no longer put it on their children and then the monitor goes to waste or the child passes…???????
Are you kidding me??? My husband and I looked at each other shook our heads went over into the corner talked for a couple minutes to each other we asked for a piece of paper and proceeded to write….
I doctor blah blah…
Give my word with 100% accuracy that nothing will happen to blank.. blank… blank.. our sons name… if
I send him home with his parents without a
Apnea monitor or….
I will be sued, Loma Linda Hospital will be sued, they (us) will own Loma Linda Hospital and I promise to hand over my medical license for good if anything were to happen…!
Well of course he couldn’t sign that we got the monitor went home and thank you Lord Jesus we did because my son would not be alive today if we didn’t have that monitor!
By the way he also had Tracheal Malaysia…
That was that funny breathing sound we heard…
Which was extremely dangerous 28 years ago literally he had a flappy airway…
Which if he were sick or crying it would literally make it impossible for him to breathe…
Ahhhh … was very stressful…
There was a point to that story sorry I got long winded!
The fact is I don’t trust anyone has my child orvmy grandchilds best interest at heart like I do!!!
I know that the school district, regional centers… state and government…
All say that they are there for our children maybe to a certain extent that is true…
and maybe I am jaded because of all the struggles I’ve had in trying to get my son the services he so desperately needed to be successful and BRIDGE THAT GAP…
17 years ago I had to go to the library to research everything.. 17 years ago they did not have Advocates there to help me…
I sat there 17 years ago at a table with 11 different individuals from the regional center….
the school district.. the early education center…. psychiatrist… nurse….
I listened intently to What they had to
Say.. What tremendous
Services they thought they were
Offering my son… (Me as he is my baby…
My son … if I don’t represent him Avocate for him who will want this for him more than I… NO ONE… I WAS NOT GOING TO BACK DOWN OR BE INTIMIDATED BY THERE SHERE NUMBERS BY THEIR FANCY LINGO…
I WAS CAPABLE OF BEING THE BEST DARN REPRESENTATIVE FOR
MY SON WITH DETERMINATION AND WORK… HARD RESEARCH WORK AND BOY OH OH BOY…I DID :)
I HANDED ALL 11 SPECIAL EDUCATION
INDIVIDUALS A PICTURE OF MY SON…
I TOLD THEM I RESPECT ED AND LISTENED TO THEM RESPECT FULLY I WANTED TO REQUEST THE SAME… :)
Well I got everything I asked for even though they told me it was not possible…. I told them I wanted that huge gap closed….
Narrowed…!!!!I was beyond myself … I knew
that everyone thought I was being
OVER DRAMATICOR CRAZY…
BUT… I just… feltIn my heart,
my soul, my motherly... Instinct was crying
Out loud to me... Help him… help help
This precious little guy is lost in his
own strange confusing little world…♡♥♡♥
Well my son is 17 now if you were to meet him and did not know he has Autism there is no way in a million years you would ever be able to guess or see that…!
I’m telling you my son started services at 2 years old …in home and then went to a early education center 5 days a week plus occupational therapy in addition physical and speech therapy …
I did not stop…
He is in a regular high school now he’s only in two special ed classes…
he’s very social…he’s one of the most popular kids in the whole school!
Is he my miracle child absolutely…
my father says “he is a miracle, he was not supposed to be with us”! He was so, so, so incredibly delayed in every way shape and form… he had no language what so ever instead of allowing them to put my son in a severely handicapped class…
I insisted on him going into a mild to moderate speech class where he could emulate and copy those kids who were talking… I have always worked with him individually myself! I’ve worked and worked and worked and he is my success story he is truly a gift! Does he have social issues at times yes! Is he over the emotional at times… yes absolutely! Do I have to take them away
privately and talk to him to
calm him down yes! But he is bright, he is articulate, he is loving, he is kind,
he is magnificent! Don’t ever give up,
I’m sorry but don’t ever take no for a answer….
find a way to get your child … yourgrandchild…
your friend’s child… whoever it is…
Do not take no for an answer! Bridge that gap right away immediately..
It’s imperative when they’re young to get services in when they turn two
and then follow up with the early education center after they turn 3… ask for extra services such a speech therapy occupational therapy Physical therapy and the list goes on and on and on… I could go on and on forever this subject or ever and ever..
I’m very passionate about children with disabilities especially autism! It is so completely misunderstood which is very sad for how smart and educated our society is supposed to be!
Back to my grandson which was my initial post! My beautiful wonderful sweet… my heart… he’s 3 years old…
Ohhhh my gosh he is just the most amazing amazing child ever…
I literally was given 3 months to live three and a half years ago… then came along my little grandbaby and look at me now still here …
still going strong.. am I sick at times yes but that baby gave me the strength and will and determination to keep on fighting.. not only for myself but for him too!
The only thing is his mother battles me on every aspect of him getting services…
She’s in denial she doesn’t want to admit her son has Autism even though…
I knew it when my grandson was 4 months…
I would tell her that I thought that he had autism she lived here for the first two years along with my son and grandson!
It took a stranger to tell her for her to finally think there was something to it!
Even though I have a son and I advocate for other autistic children shaking my head….
I can’t even help my own grandson! Help me somebody give me some advice!
He has since been diagnosed with Autism and is going to an early education center but
She has him on no schedule he’ll go to bed at 2, 3, 4am in the morning and has to be up and on the bus by 7 AM… They have no sense of organization there! They are more concerned with going outside to smoke a cigarette or being on Facebook or on their phone or computer, watching TV, playing video games verses truly giving their son the time and attention he needs they give their daughter who is a year old such positive reinforcement and attention and hardly anything to him…
When he gets frustrated or expresses himself loudly they yell at him and they just don’t get it they don’t understand he’s frustrated cuz he can’t communicate to them! No…..
I can’t even finish… I’m crying so hard right now….I just don’t know what to do I.. as a grandmother really have no rights… which is criminal! So do I just try and get custody raise my grandson and do the best for him! All of their family members see the close connection I have with my grandson and are amazed they too believe that I should try and get custody of him??? I am lost I don’t know what to do I just see my grandson slipping further further down because he has two parents that don’t want to face the fact that their son has autism and they think it’s an excuse!
Help me please! !!!!
#grandson with autism#grandparents rights#What are my rights as grandparent of autistic grandson#autism#autistic grandson#nonverbal grandson
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