Ways to manage chronic pain – Patient Talk

Ways to manage chronic pain not sure if it will work for me...

However, I will give it a go. It seems in comprehensible as my pain is so bad right now to get out of bed and try to stretch, walk and do exercise but at this point my psyche is not so strong... sorry, tears...

I'm barely hanging on I feel like I am at my wit's end with this disease. Fibromyalgia, lupus, post traumatic stress syndrome, anxiety, depression and the list goes on and on Parkinson's the newest diagnosis. It is incredibly hard, hurting 24/7 .... 365 days a year it is getting too overwhelming. It's getting to where the pain is  getting so unmanageable and I literally feel like something inside my brain is going to switch off and I will never be the same.....
Sorry for the Lume and dume post just so lost so disappointed in medical community, family, friends.
They would have no concept of what I go through on a daily basis... they only make assumptions,
oh she's not that sick, she's just trying to get attention,
who would want feel like shit .... all the time,
be non-functional in society, not be able to engage with her wonderful gorgeous 7 grandchildren who are my heart and soul...
Who would want that/this kind of life or as they say....  being lazy or get attention,  drug seeker, or, or ????

All-negative statements that you could only imagine that I have heard which has destroyed and hurt me... Beyond what any of you could ever, ever imagine or that I could ever be able to express.
I said this statement about seeking attention .... because of my personality. I am a very vibrant, outgoing, fun-loving, engaging individual ...
I get massive  attention when I used to be normal .... I still get it at times...  but it takes a lot for me to pull myself together and put on that fake front.
I don't want pathetic attention and mistrust and judgment...

I mean really who would? Us individuals who suffer with chronic illnesses are heartbroken,  damaged, fighting every single day for our existence and others only assume that they get it.
but they don't they don't even have a clue....

Not a itty bitty clue...

I have asked my family numerous, numerous, numerous times to please go on our support boards into our community... not read the medical literature by individuals who have no concept or clue of the physical aspects of this that we carry day in and day out. Do you think that one, not one, one damn family member could do this for me. I'm so tired. I'm so tired. I'm so tired. I'm so tired.



GOD BLESS...

CATHY KEAN


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Ways to manage chronic pain – Patient Talk

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